Why you should not use the yellow pages to find a doctor

by Miss Britt on May 5, 2009

I just got back from the doctor’s office and I’m furious.

Actually, that’s a good thing.  It’s good that I’m motivated enough to be angry and I am not shaking and sobbing in a pile of frazzled goo.  It’s good that I’m angry and not anxious because it reminds me that I am also not crazy.

No matter what this son of a bitch doctor says.

I started looking for a primary care doctor to see several weeks ago when the “man, I’m tired” feeling started to interfere with my day to day life.  I was waking up tired, regardless how much sleep I’d gotten the night before.  I was taking naps in my office in the middle of the day (yes, I know, I have the world’s most understanding boss.) and when I fell alseep at my desk one morning at 10:30, I knew I needed to do something.

“Is it depression?” people asked.

“I don’t think so.  I remember how that felt and this… this is different.”

This is not a mental fatigue.  Nor is the fact that my arms and legs keep falling asleep for no apparent reason a familiar symptom of depression.  Or the fact that (men, I apologize) my periods have gotten lighter and lighter and then non existent.  Going two months between periods is not depression.  Nor is abnormally dry, itchy skin.

The irritability?  Yeah, OK.  I might have chalked that up to depression if that had been the only thing going on with me.

But I knew, and that’s the best way I can say it, I knew that something was going on with my body that was more than just depression.

And then on Thursday I had what was very likely my first panic attack.  And that was the beginning of a very fast spiral down into a very dark place.

That was depression, thank you.  Choking up over having to decide what movie to watch?  That was anxiety.  Clearly.

I got a refill of my Cymbalta – which I’d only been out of for two days- and on Monday morning I took a Xanax.

The fog of the depression and the breathlessness of the anxiety lifted.  And you know what?

I was still fucking exhausted.

The difference yesterday and today is that I can see that the fatigue has progressively gotten worse, but it’s different than the feelings of being overwhelmed that come with depression.  It’s different than fears and the shakes and the heavy sadness and the inability to cope with even the most basic decisions.

The fatigue is a physical thing.  I’m looking at my life and I want very, very badly to participate in it.  But I’m too freaking tired to keep my body upright for long enough to do much of anything.  And with every passing day it gets worse, to the point where I’m desperate for a nap by the time I return home from taking Emma to daycare.

So today I went to see a doctor.  I showed him my list of symptoms and tried to explain the progression of symptoms over the last couple of months.

And then he heard the word depression, nodded his head, and stopped listening.

“I’ll give you something for the anxiety to take in emergencies.”

“Um, OK.  I wake up tired.  Do you want me to pop a pill every morning when I get out of bed?”

“We’ll change your antidepressants.  You’ll have to wean yourself off of the Cymbalta first, and then you can start taking Lexapro.”

“Um, OK.  What about the tingling?”

“That’s anxiety.”

“I was running on a treadmill and my foot fell asleep.  I wasn’t feeling anxious.”

“Yeah, you have depression.”

“Yes, I know I have depression.  And I’m more than happy to try a different medication for that.  But what about the other symptoms?  It seems like, just maybe, there’s something else going on here.”

“Well, your symptoms say thyroid but your blood tests are fine.  It’s depression.”

“Can you give me a referral to an endocrinologist?”

“Why?”

“Well, quite frankly, I know that in some cases you can have thyroid or other problems even with normal blood tests.  Something is going on with me and I want to try to find out what.”

“I can’t give you a referral without a reason.  And I have no good reason.  You have depression.”

And he handed me a script for Lexapro and told me to call back in 4 weeks.

“What’s going to happen to me when I’m ‘weaning myself off’ the Cymbalta?  Before the Lexapro kicks in?”

“Oh, you know, probably some anxiety.”

“Awesome.  Thanks.”

“See you in 4 weeks!”

I told the receptionist I’d call later to make a follow up appointment.  Right after hell freezes over.

I came home and called my insurance company to verify that I didn’t need a referral to see a specialist.  Thank you, God, for PPO networks.  The next call I made was to an endicronoligist that a friend of mine has used.  It was the first doctor I’ve been able to call that I didn’t find in a directory listing.

“Why do you want to see us?”

I listed my symptoms.  I told her about the blood work.

“Do you have a family doctor?”

“Er, um, well.  Kind of.  Yes.  I just got back from a primary care provider and he told me I was depressed and my blood work was fine.  Listen, I know that I have depression…”

“Have you been to an OBGYN?”

“Yes.”

“Has she ever talked to you about PCOS?”

“No, I’ve only seen her once and -”

“Some of your symptoms could be related to that.  That’s OK, we treat that here, too.  I just want you to be aware that we might test for that also.”

Oh my God, she wasn’t kicking me back to another doctor.  Oh my God, she was listening to me.

She went on to explain to me that depression can actually be a symptom of “endo problems”, so to be sure to mention that to the doctor.  She told me to make a list of everything I was noticing.  She told me he would want to do more blood work and different tests even though the first tests came back normal.

She made me an appointment for May 20th and put me on a wait list for any sooner appointments that might come up.

“We’re sending you a packet in the mail so you know what to expect and what to bring with you.”

I wanted to cry and reach through the phone line and hug her.

“Thank you.  Thank you so much.  Thank you.”

“It’s OK.  We’ll figure it out.”

And I believe her.

Popularity: 2% [?]

Posted in Personal - Growth and Things I'm Trying To Learn

90 Comments so far

  1. Jamie May 5, 2009 2:19 pm

    I don’t think I have ever commented on your blog before, but have read for a long time. I was diagnosed with PCOS seventeen years ago this month, and have at one or another experienced every symptom you mentioned. If you do have PCOS, I hope that your Endocrinologist is able to find you the answers you need. Uninterested doctors like your primary care doctor suck, and I hope you find a new one soon. Best wishes!

    Reply

  2. Dawn May 5, 2009 2:24 pm

    Good for you, girl!!! That’s how I finally got diagnosed (with my MS) — PERSEVERANCE!

    And I’ve decided that you going to the doctor on May 20 is a good omen: It’s my birthday. We will celebrate you going to a good doctor who will get to the bottom of this.

    xo

    Reply

  3. SciFi Dad May 5, 2009 2:33 pm

    I am so happy that you seem to have found someone who will listen and help you figure it out.

    One small piece of assvice from someone who has watched this play out: “I don’t know” is never an OK answer from a doctor; “I don’t know but so-and-so will” is.

    Reply

  4. Bonnie B. May 5, 2009 2:36 pm

    Good for you!!! Being LISTENED TO by the doctor’s office is huge. And a relief.

    Help a girl out here, though What’s PCOS, please?

    Reply

    Krystle | Snarky Kisses Reply:

    @Bonnie B., I have PCOS, I have had it since I was 18, and you are irritable, always tired, gain weight, periods are non-existent and you grow hair far to fast in far to many bad places.

    That’s it in a nutshell…

    Reply

    Little Miss Sunshine State Reply:

    @Bonnie B., PCOS=PolyCystic Ovarian Syndrome.
    It’s a hormone imbalance. The symptoms can cause weight gain, growth of facial hair (from androgens=male hormones) and infertility.

    It can also be related/in conjunction with diabetes

    Reply

  5. Elizabeth Kaylene May 5, 2009 2:48 pm

    I can relate on sooo many levels to this. I’ve been suffering from chronic pain for over two years and each doctor I see kicks me to another one. I recently saw a rheumatologist who suggested I see a therapist because she couldn’t figure out what is wrong.

    I am quickly starting to hate doctors.

    I hope they figure out what’s going on with you. I’m here if you need someone to talk to. It would actually help me out a lot, too.

    Reply

  6. *pixie* May 5, 2009 2:51 pm

    Bonnie—polycystic ovary syndrome (I had to look it up too).

    Reply

  7. *pixie* May 5, 2009 2:52 pm

    I’m so relieved that you found someone that will listen to you and not just dismiss you. Finding a good doctor can be unnerving but once you do you will be so happy. Crossing my fingers for a cancellation and a quick diagnosis.

    Reply

  8. Sheila (Charm School Reject) May 5, 2009 2:52 pm

    One word : HOLLA!

    Oh and these ones too…..

    I’m so happy that, while you don’t have the answers yet, at least you are on the right track. xoxo

    And someone really needs to give Adam a high five for me.

    Reply

  9. Bonnie B. May 5, 2009 2:56 pm

    Thank you Pixie!

    Reply

  10. avitable May 5, 2009 3:06 pm

    Yay!

    Reply

  11. Black Belt Mama May 5, 2009 3:12 pm

    Some doctors are such idiots. I’m hoping you get the answers you need at the next appointment.

    Reply

  12. Janet (Caffeinatrix) May 5, 2009 3:13 pm

    I considered PCOS when I heard your symptoms. Still wondering about your thyroid, though, because of the bone-tired fatigue. Either way, a good and empathetic endo is a good place to start.

    I still think about writing this one woman doctor a nasty letter because of how she dismissed me as depressed and all but called me crazy when it was really my hormones and my thyroid.

    One day you and I will sit down with nice tall drinks and regale each other with our “sucky doctors who want to label anything the don’t understand as depression” stories.

    Reply

  13. lee brookes May 5, 2009 3:13 pm

    I had to go through a psychiatrist before I got to the one I am using now and two clinical psychiatric nurses. Fortunately my current shrink and support network have me in a much better place these days…

    I know how shite it can be to feel so alone that the shadows get darker and darker and there is no escape…

    I am glad you have found someone who will finally listen.

    Best wishes and hugs from over the pond

    Lee

    Reply

  14. Kim May 5, 2009 3:15 pm

    Good for you…at least now you have some idea of what it may/may not be.

    Hang in there.

    Reply

  15. Kirsten May 5, 2009 3:15 pm

    I am so happy you have found a doctor (and office) that is willing to listen. I finally found one that does take the time. I am hoping for some definite answers that can have a plan of action prescribed so you can be a part of your life again.

    Reply

  16. Robina May 5, 2009 3:19 pm

    What a great feeling to call a doctor’s office and feel like they actually care about you and how you feel! That is so rare, and I’m so happy you found this office. I hope everything goes well.

    Reply

  17. Dave2 May 5, 2009 3:20 pm

    “Oh it’s all in your head.”

    Which is the response I got when I was trying to find out WHY I COULDN’T MOVE WHEN I GOT UP IN THE MORNING!! So surely it applies here! I mean, you’re just a little tired… that’s all! Who needs modern medicine when we just imagine the things that are wrong with us? The irony is that I still had to pay the dumbass doctor bill for my non-treatment.

    Perseverance is the key… it took three so-called specialists before I finally got something that worked for me. Hopefully you’ll get something to work for you soon!

    Reply

  18. MariaV May 5, 2009 3:22 pm

    I could cry for you. Woot!

    Reply

  19. Capricorn Cringe May 5, 2009 3:28 pm

    I’m glad you persisted and didn’t just give up. Now you have a place to start, with a doctor who won’t blow you off.

    *back to lurking*

    Reply

  20. radioactivetori May 5, 2009 3:29 pm

    I am so glad you were persistent. Sometimes, as much as I do normally love doctors, they are arrogant and think they know everything and don’t listen. After all, we are “just women” and once you tell a doctor you have depression, a lot of them stop listening right then (as you discovered). Most people give up and assume the doctor is right. I love that you didn’t and that you will get to the bottom of this as soon as possible so you can really live your life again. My endocrinologist is awesome and listens to me even when no one else seems to. I hope/wish the same for you!

    Reply

  21. Dick Carlson May 5, 2009 3:30 pm

    Just for a moment, think of all the restaurants that you’ve visited — and estimate a percentage of them that actually did a good job. (My guess would be about 30%)

    Then think about hair stylists. (Me = 20%) Contractors (40%) Carpet Cleaners (70%) Landscapers (10%)

    Your numbers probably vary, but my point is that for some reason we all expect that medical people should all be capable — at least I used to. Nowadays, if the first one that I encounter actually is even PASSABLE at whatever it says on the sign I wriggle like a happy little puppy.

    My wife is a diabetic heart bypass patient — we spend a large part of our lives in medical offices. My personal, not-at-all-scientific observation is that less than 30% of the professionals we encounter there would be trusted to house-sit our dogs.

    I wish that wasn’t true.

    Reply

    Finn Reply:

    @Dick Carlson, As my mom always says, SOMEBODY has to graduate at the bottom of the medical school class…

    Reply

    Dawn Reply:

    @Finn, And what’s that person called? Doctor. :-P

    Reply

  22. Krystle | Snarky Kisses May 5, 2009 3:35 pm

    Oh good good good good good!!

    You know, PCOS could be a very strong possibility. Did you have any trouble getting pregnant? I assume not since you have 2 kiddos but I have PCOS, and I have depression and anxiety and I was ALWAYS so tired, extremely, I could sleep 12 hours a night and still wake up unrefreshed pissed at the world, and COULD NOT snap out of it. I was gaining weight, even though I wasn’t eating uncontrollably. PCOS definitely could be a possiblity though.. but have you thought about Narcolepsy? I was diagnosed with that on April 1st, and I now take 20mg Adderall two times a day, 150mg Wellbutrin and 40mg Citalopram (generic of Celexa) per day for my Narcolepsy, Anxiety and Depression and seriously – I feel like an entirely NEW PERSON! The Adderall gives me that extra pep that I need so I’m not falling asleep at my desk like I was prior, and the combination of Citalopram and Wellbutrin level everything out dep/anxiety wise.

    If you ever have any questions about the PCOS or Narcolepsy and what my symptoms were (because they were everything you have – and my blood tests came back NORMAL too), let me know.

    Reply

  23. Kelly May 5, 2009 3:37 pm

    I am so glad that you aren’t backing down. I probably would have left the office in tears and defeated. Keep working on finding out what is going on!!

    Good luck!

    Reply

  24. Lynn @ human, being May 5, 2009 3:41 pm

    You should write a letter to the doctor from the yellow pages and file a complaint with the accrediting organization and with your insurance company.

    Seriously.

    But when you feel awake enough to lift your pretty fingers.

    I’m glad you were heard.

    Lynn

    Reply

  25. turnbaby May 5, 2009 3:44 pm

    The three things that came to mind in reading your last two posts were: 1) GPs should NOT prescribe these anti-depressants without other care and then just switch people on a whim blaming everything on ‘the depression’; 2) female doctors RULE; and 3) despite it all I knew you would keep pushing.

    Reply

    Hilly Reply:

    @turnbaby, On one hand, I’m really glad that GPs can dispense anti-depressants now because a.) it shows that depression is totally mainstream and b.) it’s easier for those of us who already have a set med routine and just need to get in and out quickly. However, on the other hand, I think psychiatrists should still have to be involved in this process. As a rule, I’m never fond of PCPs…never.

    Reply

  26. Melissa May 5, 2009 3:44 pm

    How frustrating! I have been having the hardest time finding a good doctor in this town too. Hope you get the answers you need, girl!

    Reply

  27. Momma May 5, 2009 3:48 pm

    kool. KOOL!!!!

    Are you running around all hyper ’cause someone finally validated your knowledge of your own symptoms? that’s how I’d be feeling.

    Again….KOOL

    Reply

  28. Finn May 5, 2009 3:49 pm

    Halle-fucking-luiah. Here’s to NOT being crazy.

    Reply

  29. Britt's mom May 5, 2009 3:49 pm

    I AM SO PROUD OF YOU!!!!!!!!!!

    Please give me a call–about this “weaning off the Cymbalta” thing. Dumb ass piece of shit freaking GP. And THIS, my darling, is why I am going to be an ARNP.

    Freaking retards!!!!

    Reply

    Bre Reply:

    @Britt’s mom, I <3 you more and more every day :)
    You will be a fabuluous ARNP :)

    Reply

    Bre Reply:

    *fabulous*

    Reply

  30. TRACI May 5, 2009 3:54 pm

    I am so glad that you are being your own advocate. I mean, you are hot and all but I don’t really wanna see you on Mystery Diagnosis.

    Reply

  31. Kristin May 5, 2009 3:56 pm

    Babe,
    I have PCOS, and I haven’t had the tingling, limbs falling asleep, etc.
    I hope that they find out what’s happening with you. Another common “mistake” is people have been diagnosed with PCOS, when indeed they have celiac disease.
    Call me

    Reply

  32. georgeh May 5, 2009 3:59 pm

    You have lived there how long and you are just now looking for a primary care physician – family doctor? And you are surprised to get treated dismissively? You are only one step up from the people who wander into an emergency room feeling tired.

    If you had found a doctor when you moved, you could have shopped for one carefully, and he would have a baseline of examinations to use to judge your present condition.

    Do you have a dentist, or are you going to wait till you have a toothache?

    Learn from this.

    Reply

    Sheila Reply:

    @georgeh, Seriously? ‘One step up from those that wander into an emergency room?’ If her doctor had LISTENED to her, instead of just dropping all of her symptoms under depression, maybe she would of gotten better results. Just because the general public didn’t invest several years in medical school doesn’t mean we don’t know when something is wrong with our own bodies.

    Reply

    Sheila (Charm School Reject) Reply:

    @Sheila, I am so glad that you found a kind way to tell him to go fuck himself. My response was a lot more vicious. Thank you for letting me keep my reputation for being the sweetest thing on the block. ::snicker::

    Reply

    Sheila Reply:

    @Sheila (Charm School Reject), Thanks! It took me a little bit of time, and quite a bit of backspacing, to phrase that comment!

    Reply

    Finn Reply:

    @georgeh, You should also probably make sure you have all the facts before you make a judgment. You have no idea what she’s done and not done.

    Reply

    Britt's mom Reply:

    @georgeh, no human being on the planet deserves to be treated “dismissively”. In case this comes as a surprise, 63% of Americans WITH insurance find it difficult to pay for medical care even WITH health insurance.

    The days of doctors being some kind of paternalistic god are gone. Thank God!

    Reply

    Wendy Reply:

    @Britt’s mom, Totally agree with you. And my insurance doesn’t pay for preventative care. So that is all out of pocket for me. Paps and all. So yeah. I only go when there is something wrong. I don’t have the money to go just to meet the doctor and get to know them.

    Reply

  33. Lynette May 5, 2009 4:02 pm

    I know how it feels. I have a thyroid condition and it makes you tired and emotional and crazy. And you’re not.

    I hope they find out what the problem is.

    Reply

  34. Amy May 5, 2009 4:03 pm

    As I was reading through the beginning of your post I thought to myself, it sounds like she has PCOS.
    I’ve been dealing with it for five years. It’s not always easy, but it’s treatable and it has a name.
    Good luck.

    Reply

  35. floating princess May 5, 2009 4:04 pm

    I’m so glad for you to have found a doctor who hears you! I don’t think there’s much worse than feeling dismissed by a supposed professional. Here’s hoping for a cancellation so you can get in sooner!

    Reply

  36. perpstu May 5, 2009 4:06 pm

    I want to cry reading this because I am so happy someone LISTENED. I hope you can get in before the 20th, but at least you have a silver lining on the horizon if you can’t. Good luck!

    Reply

  37. Mama Bub May 5, 2009 4:13 pm

    Well, this internet stranger just about cried tears of joy at the end of this post. I had nothing to say after the last post, because what was there to say? I felt awful, but also like my words were useless.

    And now, well YAY!

    Reply

  38. Annie May 5, 2009 4:16 pm

    A good Endocrinologist ROCKS!

    Reply

  39. Dee May 5, 2009 4:17 pm

    I am rapt for you that someone finally appears to be taking interest and believing in you! I hope this appointment is going to be the start of the end (so to speak) :)

    Reply

  40. Katie May 5, 2009 4:24 pm

    My mom said it seems like we’re going through some of the same things. If it ends up not being PCOS, or if PCOS doesn’t explain everything, you should google sub laboratory hypothyroidism. There’s disagreement in the medical community about where the line should be (one includes me, one doesn’t)between normal and hypothyroidism on the blood tests. So you could have symptoms, but your blood is still showing up normal so no one knows how to fix you. It SUCKS.

    Reply

    Little Miss Sunshine State Reply:

    @Katie, This is how my doctor is treating me. My levels had been “borderline” for many years. My newest doctor decided to put me on thyroid hormone and orders thyroid tests that are more sensitive than the ones that are ordered with a physical.That’s how she determines my dose.

    Reply

    Katie Reply:

    @Little Miss Sunshine State, That’s good to know. We’re working on a vitamin D deficiency first, but I’m hoping if that doesn’t work he’ll be willing to treat that way or at the very least refer me to an endocrinologist.

    Reply

  41. Marni May 5, 2009 4:39 pm

    I am so glad you found someone that will listen and consider your feelings as well as a test.

    Good luck!

    Reply

  42. WhoStoleMyZen?! May 5, 2009 4:40 pm

    I was diagnosed with PCOS 7 years ago. According to the Reproductive Endocrinologist I was seeing due to infertility, it’s one of the hardest conditions to actually properly diagnose without seeing an endocrinologist. Bravo to this physician’s office for listening to you right off the bat! It took me 14 years to finally be diagnosed and to prove to everyone that I wasn’t crazy and that I had something real and my symptoms weren’t phantom in nature! While I don’t wish a PCOS diagnosis for you, I do wish you an ultimate answer to whatever it is that is going on! Good luck!!!

    Reply

  43. Bad Mummy May 5, 2009 4:43 pm

    The endo might want to ultrasound your thyroid. Cysts on the thyroid don’t always show up on blood tests, but they will fuck you up nevertheless. But that gel they use for ultrasounds will make your neck all soft and smooth.

    I’ve had a biopsy on my throat. Done by a doctor that showed more interest in my lack of post-secondary education than my health. So, no, it’s not any better in Canada.

    Reply

  44. bo May 5, 2009 4:47 pm

    Yes. An endocrinologist is what you need. Here’s hoping you learn something useful. Hang in there, Britt.

    Reply

  45. ed May 5, 2009 4:54 pm

    thats awesome britt!!!

    Reply

  46. amanda May 5, 2009 5:06 pm

    glad you finally found a decent dr.. i know firsthand as well they’re ridiculously hard to come by..

    Reply

  47. PaintingChef May 5, 2009 5:08 pm

    YES! An endocrinologist! They are the most wonderful doctors ever because they KNOW that we KNOW when something isn’t right with our bodies. They listen. They run tests. They do NOT blow you off.

    (Likely I’m very high on the endocrinologist bandwagon at the moment because I’m seeing one to get me knocked up).

    Don’t give up. They may not figure it out immediately but they WILL figure it out. Sending you love.

    Reply

  48. Kellyn May 5, 2009 5:31 pm

    First off, I am so glad that you listened to yourself and made the call anyway. Taking charge of your own health care is very important! I hope everything is okay.

    Second, as someone who works for an insurance company…file a complaint against that doctor. That is the kind of doctor that is getting paid for each patient he sees, or for satisfaction results from patient surveys. If an insurance company is made aware of his behavior towards you and your symptoms he might not get paid as much.

    Also, file a complaint with the clinic. This is a great way to made a difference for someone else.

    Reply

  49. Crys May 5, 2009 5:31 pm

    years ago my thyroid panel came back as “within normal ranges” even though i couldn’t get out of bed. i was gaining weight, my skin was awful, i was irritable, etc. everything you’ve mentioned but not the tingling.

    subclinical hypothyroidism is rampant.

    check out Mary Shomon:

    http://thyroid.about.com/library/hypoquiz/blhypoquizi.htm

    i trust her.

    Reply

    Britt's mom Reply:

    @Crys, I just saw some books by her in Barnes and Noble and almost got them today!

    Reply

  50. Nobody™ May 5, 2009 5:32 pm

    Hope you get it figured out.

    And my experience is that Cymbalta kicks Lexapro’s ass. It works good for my anxiety.

    Reply

    Britt's mom Reply:

    @Nobody™, I agree. Lexapro is an older generation antidepressant. Dumb, dumb ass moron piece of shit doctor

    Reply

    Little Miss Sunshine State Reply:

    @Britt’s mom, DO NOT let Britt wean off the Cymbalta…at least until she sees the new Doc.

    Reply

  51. Crys May 5, 2009 5:33 pm

    (did you get the specific #s of the TSH panel? if so and if you give them to me, i can tell you what i think … i’ve been dealing with this for years, and have grown to be very dubious of Western medicine physicians where this area is concerned)

    (always ALWAYS get your numbers, btw. most doctors will say “the #s came back normal” when in actuality they should be around 1 or sub 1.)

    Reply

  52. ~jtm May 5, 2009 6:00 pm

    Good for you! I’m glad your doctor is listening. My endo (I have dual thyroid disease) and my gyno (also peri-menopausal) are at odds with each other and I’m stuck in the middle. I’m close to telling them both to suck it and find someone new.

    Reply

  53. Karen May 5, 2009 6:42 pm

    Good for you. I have had a run of some health issues recently also and I don’t know where I would be without the right doctor. Your doctor should be on your side and be your advocate. I am proud of you asking for the referral. I am not sure I would do that.

    Reply

  54. Hilly May 5, 2009 6:55 pm

    You probably have thyroidism…or PCOS…or brownie-itis…or spelunking syndrome.

    I know this cause I’m a doctor, you see. ;)

    (in all seriousness, I am glad we got to talk about this stuff today)

    Reply

  55. Poppy May 5, 2009 7:17 pm

    When I read this post I thought of PCOS, although I couldn’t think of the acronym until you said it. I don’t think I have it, but someone very close to me does if you need any more people giving you advice on how to work with your doctor on that if it turns out you have it.

    Reply

  56. Gypsy911 May 5, 2009 7:19 pm

    I was a Nurse Case Manager at Florida Hospital Orlando for 12 years. If you need the inside scoop on any doctor….let me know. I know most of them!

    Reply

    suzan verner Reply:

    @Gypsy911,

    i am going thru same thing i am always exhuasted always tired no energy . new in orlando and every doctor goes straight to depression its is not depression. and my eyes always hurt to. can you hel?

    Reply

  57. Sybil Law May 5, 2009 7:23 pm

    I am SO glad someone listened to you and help is on it’s way!!
    I ALWAYS go with a female doctor. In my experience, they just listen better to my female issues. Or my threats – whichever the scenario calls for. :P
    xoxo

    Reply

  58. Faiqa May 5, 2009 7:41 pm

    I’m glad you figured all of this out. I’m also sad that you represent a minority of people in that you dismissed your dismissive doctor. Most people would have just rolled over and said, “OK, doc, you’re the doctor. I guess I’m wrong…”

    A good doctor always believes their patient.

    Reply

  59. Selma May 5, 2009 7:50 pm

    Good on you for persisting. It is such a shame that so often doctors don’t look at the overall picture. Hope you get an accurate diagnosis soon. Sounds like that doctor should be weaned off something….

    Reply

  60. Coal Miner's Granddaughter May 5, 2009 8:00 pm

    O.M.F.G.

    I’m going to beat the shit out of that lame excuse for a primary physician who was more interested in the fancy dinner the Lexapro people will give him if he prescribes enough of the stuff to people who don’t need it.

    And don’t get me started on the lack-of-PCOS knowledge in the medical community in this country. Full glucose/fasting insulin/lipids/triglyceride blood panels and vaginal sonograms should be part of every. yearly. OBGYN exam.

    Yes. I said yearly.

    Because that’s how PCOS is diagnosed. And that’s how it goes undiagnosed. Because looking at a patient, taking a cervical swab, and fisting the uterus? Doesn’t diagnose it.

    *Stepping down off my soapbox.*

    Darlin’, if you have PCOS, it’s not the end of the world. It’s completely treatable and you can live with it. And I’m glad you’re seeing an endocrinologist. And I was about to recommend you drive up here to see mine.

    Many, many, many hugs.

    Reply

  61. Madelaine May 5, 2009 9:53 pm

    So glad you got a second opinion! Sometimes when I feel like that I either a) get so discouraged I do nothing or b) get so pissed off I take immediate action- sounds like you went with b) and that just solidifies my own determination to fix a similarly crappy situation in my own life ;-)

    Reply

  62. Bre May 5, 2009 10:06 pm

    I got goosebumps reading this! I’m excited for you, and glad that there are people out there not ruining the name of healthcare like the idiot doctor.
    I hope something opens up for you sooner…
    Sending a hug through my outdated laptop,
    Bre

    Reply

  63. FyreGoddess May 5, 2009 10:07 pm

    I’m so glad you’re getting the help you need and that you have a PPO. Those of us without one who have (so-called) “normal” test results would probably be fucked (and in many cases are) without the ability to just go see whatever doctor we need to see.

    I’ve been through just what you’re going through and, thankfully, I have a large support network around me including quite a large number of family members who also have thyroid disorders.

    Good luck with all of it. I hope you get the right diagnosis.

    Reply

  64. Fantastagirl May 5, 2009 11:59 pm

    I’m glad you had it in today to call your insurance company and call the specialist…perhaps someone will cancel and you can get in sooner. Good luck Britt – I know they can figure this out for you.

    As for your primary care doc? when the specialist finds what is wrong with you – have those test results FAXED to his office or better yet hand deliver them to him – and say – I told you I was sick.

    Reply

  65. Breigh (Canadutch) May 6, 2009 1:18 am

    I’m glad you found someone who will take you more seriously. I have also been having problems in the doctor department lately but that’s pretty much stock standard here in Holland. Everyone does.

    A few years ago, I was diagnosed with PCOS-LIKE symptoms. That’s about as far as they’d go with it. I had a lot of the same probs as you but here they just don’t take PCOS seriously. They’ll tell you that you have the symptoms, but that PCOS isn’t actually a disease, rather just different symptoms together.

    I dunno, they confused the shit out of me. All I know is, I want to go where you go so they can help me too! haha because I’ll never get it here.

    Reply

  66. Sarah May 6, 2009 1:59 am

    I’m so glad that it looks like you found a Doctor that can help you and that actually takes all of your symptoms seriously and doesn’t just chalk it up to depression.

    That other Doctor can suck it.

    Reply

  67. RebTurtle May 6, 2009 5:01 am

    Here’s to endocrinologists! Without them we’d have two less kids since my wife has a stubborn thyroid that REALLY didn’t want her to get pregnant. Stupid gland – we showed it who’s boss…

    Reply

  68. Nyt May 6, 2009 6:45 am

    Just a couple of things…

    1. The smartest thing anyone ever told me..”MD stands for medical doctor, not minor deity”

    2. Around here, there are a few doctors showing up with extra education. They are internists with extra credientials in peds and geriatric meds. The result is more of a “family doctor” and in my experience, better listening skills. When I was deathly ill with Asian salmonella, one phone call brought the doc in early, and by the time I arrived, he had already made an appointment for me with an infectious disease specialist in case “he was wrong”. He was right.. I was grateful..and sincerely impressed… When things calm down and you’re back to searching for a primary care doc, take a look at this particular specialty, it might be worth your time…

    Notice I said when things calm down, they will, you will, and it will all be fine…eventually..

    Reply

  69. Lin May 6, 2009 7:17 am

    It is a great thing that you are a fighter. Your primary care doctor took the easiest route — an antidepressant. I hope you are able to find out what is going on with your body soon. This has got to be hell on you.

    Reply

  70. Cissa Fireheart May 6, 2009 7:56 am

    I am glad that you didn’t take the answers you were given and just went on. I am glad you investigated and fought for a second, more in-depth opinion.

    I hope you get some answers. You deserve them.

    Reply

  71. Bubblewench May 6, 2009 8:03 am

    Thank freakin god! That is a good Doc office. Glad you made that call.

    It’s awful when you just know something is wrong with you and the doctor chalks it up to something that is totally not right.

    SO glad you are getting good help.

    Reply

  72. whall May 6, 2009 8:55 am

    Now you can know what it’s like to shave your chin. I knew you were wanting to know.

    Reply

  73. Vicky May 6, 2009 9:00 am

    I was just diagnosed with PCOS after dealing with my primary and my OBGYN that treated me like yours did. I’m in Orange county, and found a wonder Endocrinologist who is with Fl Hospital that specializes in PCOS. I highly recommend her. Dr. Angela Mazza. Since she is with Fl hospital, she is covered by most insurances.

    Reply

  74. Wendy May 6, 2009 9:07 am

    I am so happy for you! The first successful step in getting diagnosed!!!! I don’t want to be a downer, but there is still probably a long way to go. Every time we went to the doctor for my husband, I was always so excited because we would finally get a diagnosis. And it took almost 3 years to get it. But you have made it through the first big hurdle! Keep going! Don’t give up though it all! And the fact that the lady that answered the phone and makes appointments is so knowledgeable and caring speaks volumes for that doctor. After so many doctors, yeah. That is awesome.

    Reply

  75. sue May 6, 2009 10:14 am

    Having someone blow you off is the worst. I had a herniated disk in my neck many years ago and they couldn’t see it on an x-ray so the doctor just acted like it was all in my head. Yeah, I can’t move or use my left arm because it is all in my head. Asshole. Anyway, finally they did an MRI and saw it clear as day.

    I digress. Hope you can find out the cause. You said they’d done bloodwork so I’m guessing they ruled out diabetes? (I’m diabetic and know the tiredness can be overwhelming if I’m not where I should be.)

    Good luck, hun. We’ll be rooting for you.

    Reply

  76. Kellyology May 6, 2009 10:17 am

    I’m so glad that you made the decision to see an endocrinologist. There are so many disorders other than depression that can cause exhaustion like you’re describing. For example RA, Lupus, and most of the auto-immune disorders. And quite frankly a bunch of the diagnostice tests that a regular GP would give you are for shit. So congrats on your new appointment. I wish you well.

    Reply

  77. Jessica May 6, 2009 11:24 am

    Oh my god- What an ass! And then, what a great office! I am glad that you found someone that seems to want to actually help! Sometimes the medical system just gets me. I mean, come on! We are people here.

    I know it is not a cure or anything- but maybe try taking some iron supplements. That really helped my fatigue and also my periods. It might help for now, until you and your new kicking doc figure it out!

    Happy Healing!

    Reply

  78. Fogspinner May 6, 2009 11:31 am

    Isn’t it great when you finally find someone who will LISTEN. Even if it’s over the phone for now. That’s how I felt when I finally found a Dr who could DEAL with my CF problems without shutting down and stopping diagnosing as soon as they heard “Cystic Fibrosis”. After a year of almost dying twice and in between trying to recover from almost dying, then almost dying again in Jan THIS Dr said, “Wait…. what?! Why are you doing that… you have THIS too, and THAT’S your main problem… treat like this..” Hoply cow! I almost feel normal. I mean now I only have 35% of my lungs left but HEY, we can live a fairly normal life with that!

    So I hope for you that you find an answer, because NOTHING spells relief like KNOWING!

    Reply

  79. Noelle May 6, 2009 11:52 am

    I’m so sorry you are going thru this and I am so sorry you had that shite dr. I have been there! You were right to ask to see someone else esp because thyroid disease is one of the most missed things in women. I have hypo and your symptoms sound a lot like what I have when my meds are messed up. I have had this disease since I was 16. Such a small thing like your thyroid can F you up physically. I am currently taking Armour thyroid which is a natural thyroid. I took synthroid & levothyroxine since I was diagnosed at 16 and finally I just realized they werent working for me. Since finding a dr who would rx Armour for me I have felt better than I have in YEARS..literally. I hold out hope for you..I know they will figure it out..it sounds like you found a good dr.

    Reply

  80. Mrs. Schmitty May 6, 2009 1:39 pm

    I emailed you the other day about this..I had a feeling, as I too have PCOS. See about the PMDD (google it, it’s easier to read about it then me explain). A lot of times they go hand in hand. Good luck and be well Britt!!

    Reply

  81. Kim May 6, 2009 3:30 pm

    Fabulous. I have thyroid issues and that is what it sounds like to me. I am so glad that you’re finding a doc who will LISTEN to you. Kick that family practice doc to the curb for sure.

    Reply

  82. Kate May 6, 2009 4:11 pm

    The world needs more doctor’s offices like that endocrinologist’s.

    Reply

  83. Little Miss Sunshine State May 6, 2009 4:37 pm

    Kick that Primary MD to the curb. I have a really good (female) doctor in Longwood. She REALLY listens and has great Nurse Practitioners working with her. Let me know if you want her name.

    You are on the way to getting some answers and I’m really happy for you.

    Reply

    Avitable Reply:

    @Little Miss Sunshine State, you’re not talking about Dube, are you? She’s horrible.

    Reply

  84. blues May 6, 2009 5:13 pm

    Incredible.

    I’m so glad you’re seeing a specialist. What is up with our freaking medical system? It’s insane to turn people away like that. So irresponsible.

    Reply

  85. Paul Blake MH May 7, 2009 5:52 am

    Hi,
    Just a few observations I have made. Have you noticed that modern medicine says they need your money to find a cure and yet they have not found a cure in 60 years, 0. And autoimmune diseases like Thyroid disease are interesting there are approximately 80 to 100 with another 40 waiting for a name and if you get one you will get another and so on. And medical science cannot explain why we have this autoimmune epidemic. You can trigger one of them just by having an auto accident, taking aspirin or medication or by starting a new exercise routine, even too much stress says latest research. Naturopathic medicine says, “Look for the root, it is in the basics beginning with what is on your fork, what toxins are in your body, what exercise do you do, what stress is in your life, what is your spiritual base”. Scientific arrogance has led us down the wrong path we better stop and take a close look at what is happening. This month 150 new chemicals will be added to the 85,000 which are part of the autoimmune problem. They will be added too industry with no oversight control at all. Autoimmune disease is the worst kind of contradiction; for an Thyroid sufferer you are attacking your body with your immune system, a world upside down. God bless you in your search.
    Sincerely
    Paul

    Reply

  86. Rachael May 7, 2009 3:23 pm

    I am SO GLAD that you found a doctor who is going to listen to you and figure it out. It should not be so hard to find one, it took me years, and my fatigue is finally fading with thyroid medication. I hope that they really stick with it and get you better!

    Reply

  87. Lady Julia May 7, 2009 5:20 pm

    I am so happy for you that you’ve found someone who will listen to you. I went through something a few years ago and my primary care physician wouldn’t listen either. What a helpless feeling to feel horrible AND have no one who is willing to even try to help you. Good luck on May 20th!

    Reply

  88. Missives From Suburbia May 9, 2009 11:07 pm

    I love an understanding doctor. They are so, so rare. I hope you get an answer.

    Reply

  89. Susan May 11, 2009 1:24 pm

    Hope is sweet and so needed when life is tough. I love the ending of this post, “We’ll figure it out.”

    Reply

  90. Ren May 11, 2009 5:38 pm

    It’s amazing how good it feels when you find a doctor that you’re happy with. I hope that is the case for you with this new one, and it sounds like they’ll handle a wide range of issues so you may not need a PCP for the most part.

    Reply

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